The worst part is the boredom, the words many of my friends and family heard from me following me falling asleep behind the wheel of my car, read more about this here.I took a vow a few weeks ago that this blog was going to be COVID-19 free but it's so hard to keep away from it. Click To Tweet
I took a vow a few weeks ago that this blog was going to be COVID-19 free but it’s so hard to keep away from it.
What am I going to do with myself now I can’t do my job? The words I have heard a few times in the last week.
I know just how frustrating it will be having left my job because of overwhelming fatigue and lack of cognitive ability. This is now majorly improved through talk typing and Grammarly try it you won’t look back.
Anyway, I digress though this is about how this is affecting me it is also about how it’s affecting my friends, family and ex-colleagues, I would imagine ex-colleagues are majority working from home as they are classed as key workers. As would I have been if I was still there.
I would have been thrilled to hear of Health Centre’s having their windows smashed at 3 am when the staff inside are trying to provide an out of hours GP service. Scum still keeps rising even at a time like this.
However, I found things to occupy my time, the main and most important thing I did was start this blog.
I am seeing workers putting down their work phones, deleting work emails and suddenly realising there is life away from work, as someone that was as guilty of this as anyone it’s a tough thing to do but all of us have to keep a work-life balance because when that work finishes for whatever reason that’s when you find yourself with nothing to do.
MS awareness month has slid by without notice because of COVID-19 but with MS and chronic illness, it is easy to feel isolated suddenly friends and family are still doing things you can no longer do, but this isolation is different because it affects us all.
Though according to the government I am not classed as being in an at-risk group, I know myself how my MS reacts to stress and any changes such as a virus so I am happy to self isolate for that reason alone.I am used to a form of isolation, I am not used to having my groceries delivered to my door and not being able to open it. Click To Tweet
What I hope for
What I hope comes from all of this is that people start to have some understanding of how difficult it is for people with chronic illness to miss out on doing the things they love, though at the moment there is not much chance of FOMO as everything has either been postponed or cancelled.
But more than anything people keep on looking out for their friends and neighbours, too many of us have lived in bubbles of our own lives if this virus has taught us anything it is that people have been made to stand up and take notice of their surroundings.
I am now in so many WhatsApp support groups, from my dentist to the local parish council and more in between, it is so lovely to know that people are there to support you.
There will always be those idiots who selfishly go about doing what they want to do without thought for others, but I am sure they will be very much in the minority.
He began to speak
So when the boredom overtakes us we are fortunate to be able to video call, attend Zoom Meetings, talk to people on the phone, WhatsApp, Facebook Messenger there are just so many ways for us to speak, Pop Quizzes, House Party, Friends Quizzes, Pub quizzes, get the old board games out, use this time to reconnect with people and appreciate the world outside.
Its something I do now so much more than I ever did.
We will get through this
I don’t know how many of us will come through this, many peoples lives will change for good, be that work, relationships, or just how we suddenly see things differently.
I do believe we need to keep up with the support groups we have created and found and stop walking around in our little bubble.
ShiftMS has fabulous resources along with chat groups and forums.
The Mighty covers all forms of chronic and invisible illness, by making health about people.
As does Wego Health who I am an MS Patient Leader for.