This is a post I’ve been going to write for some time because after my newspaper article last week and going to London last weekend it really became noticeable that even though I have a progressive illness because I take pride in my appearance and wear make-up people think because I look well, I am well.
Next time you look at me and think I look well, please understand what it took to make me look well, If for example, it is something I am doing during the day, I won’t even have a shower, just a strip wash, then I will rest for a while.
To put full makeup on it can take me between 2 and 3 hours because I have to keep stopping in between, thankfully my hair is so short now that it takes very little sorting with the straighteners and dry shampoo.
While I am doing all this my heart rate is going up which then brings my blood pressure down which makes me dizzy.
Just an example of what it took out of me to prepare for the photographer for the article and then while he was here. I only put minimal makeup on.
When you next look at someone with a chronic/invisible illness and think well they look OK just think for a minute and consider how long they have taken to look OK because believe me it’ll be a lot longer than you think.
Prior to my illness I have flown in from work at 6:00 pm and been showered and changed, makeup on and out the door within half an hour, but no more.All I ask is please do not take away from the fact because I look well, it doesn't mean that I am. Click To Tweet
It will have taken time to put some makeup on my face and I am wearing presentable clothes, I still have tremors on the inside, my head is still spinning with vertigo, I will be wearing a pad in case either my urinary or bowel incontinence strikes while I am out, I will still be sensitive to certain noises, light and smells, and my attention span will be reduced.
I may also have difficulty finding words and I will have a constant overwhelming feeling of fatigue throughout my body and the longer I am out the heavier my limbs will get.
But hey that’s ok because I look well!
This is the painful reality of invisible illness.